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Advocacy, Education & Empowerment

Help Out Genetic Alliance!

Take a few minutes to inspire Genetic Alliance to better understand our toolbox and deploy it to improve what’s most important on the health care landscape.

Baby's First Test Webinar

5 Years of a National Educational Initiative Tuesday, December 6, 2016 1:00PM - 2:00PM EST

Register Today!

Join us for the Genetic Alliance 30th Anniversary Celebration and Conference! March 9-10, 2017

Genetic Alliance is Hiring!

Now hiring for an Administrative Assistant. Click the image to read the job description and apply today!

Congratulations Sharon Terry!

Sharon Terry was honored as a Top Patient Activist at this year's Health 2.0 Annual Fall Conference.

BioTrust holds the space for individuals, families, and communities to participate in translational research.  The revolution in health will only happen in a trust environment with people at the heart of it. BioTrust examines and creates policies, and provides novel tools for participants to actively engage in research.  The BioTrust Ethics Team, together with the Genetic Alliance Institutional Review Board, provides oversight.

With better health as the goal, Genetic Alliance puts genetic and genomic information into context for individuals and families. Our tools increase access to services and provide the information people need, when they need it. From family health history to whole genome sequencing, our combination of accessible, culturally competent print and web resources, multimedia, and health information technologies empower people to make healthy decisions.

Engaged families are informed, educated and have access to information and services when they need them most. If you are planning a family or advocating for your child, Expecting Health meets a critical need in the health delivery landscape. We have tools that lead to more informed decision-making, educate consumers around appropriate testing and public health services, and help individuals navigate the complex health care delivery system.

Highlights

Learn about internship opportunities at Genetic Alliance during the fall, spring, and summer!

Disease InfoSearch is a resource for patients, clinicians and researchers.

A place to learn about all the ways genetics is a part of your life.

Join us March 9-10, 2017 for two days of celebration, ideation and collaborative visioning as we begin “Co-Creating a Healthy Future”

Find resources on advocating for accessible communities with Advocacy Atlas!

The purpose of CLSF is to provide a clearinghouse for information on Coffin-Lowry Syndrome(CLS), and to provide families affected by CLS a general forum in which to exchange information, ideas

Building online health and wellness communities for patients and caregivers

Learn all you need to know about Newborn Screening.

Stay Up To Date with News, Action Steps, Meetings & More!
 

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4301 Connecticut Ave NW, Suite 404, Washington DC 20008-2369 | Tel: 202.966.5557 | Fax: 202.966.8553 | EIN 52-1571905

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