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Advocacy, Education & Empowerment

Register Today!

Registration is now open for "Sharing Clinical Trial Data: Maximizing Benefits, Minimizing Risk." The webinar is Thursday, January 29, 2015 at 12:00 p.m. ET.

Genetic Alliance is Hiring!

Now hiring: Director of Network Activities for Biotrust, Program Manager for Expecting Health, and Health Program Manager. Click the image to read the job descriptions and apply today!

Job Openings at Genetic Alliance

Development of 'White Label' PEER

Genetic Alliance Receives $500,000 Robert Wood Johnson Foundation Grant to Create ‘White Label’ Version of Platform for Engaging Everyone Responsibly (PEER)

Genetic Alliance Receives $500,000 Robert Wood Johnson Foundation Grant to Create ‘White Label’ Version of Platform for Engaging Everyone Responsibly (PEER)

Intern at Genetic Alliance

Become part of the Genetic Alliance Internship Program this summer - start by checking out the different exciting roles! Then, submit your application!

Genetic Alliance Internship

BioTrust holds the space for individuals, families, and communities to participate in translational research.  The revolution in health will only happen in a trust environment with people at the heart of it. BioTrust examines and creates policies, and provides novel tools for participants to actively engage in research.  The BioTrust Ethics Team, together with the Genetic Alliance Institutional Review Board, provides oversight.

With better health as the goal, Genetic Alliance puts genetic and genomic information into context for individuals and families. Our tools increase access to services and provide the information people need, when they need it. From family health history to whole genome sequencing, our combination of accessible, culturally competent print and web resources, multimedia, and health information technologies empower people to make healthy decisions.

Engaged families are informed, educated and have access to information and services when they need them most. If you are planning a family or advocating for your child, Expecting Health meets a critical need in the health delivery landscape. We have tools that lead to more informed decision-making, educate consumers around appropriate testing and public health services, and help individuals navigate the complex health care delivery system.


Disease InfoSearch is a resource for patients, clinicians and researchers.

A place to learn about all the ways genetics is a part of your life.

It’s time to take control of our health! Come together to Free The Data.

Find resources on advocacy for accessible communities with Advocacy Atlas!

The Marfan Foundation's mission is to create a brighter future for everyone living with Marfan syndrome and related diseases.

Building online health and wellness communities for patients and caregivers

Learn all you need to know about Newborn Screening.

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